Providing education, encouragement and self-empowerment to those affected with MS, their families and caregivers.
ABOUT OUR LOGO
Our logo was designed by our members who have Multiple Sclerosis.
The downward lightning bolt represents the day you were diagnosed with MS and
all the confusion you felt and how it would impact your life. The upward
lightning bolt represents you taking charge of your MS and not becoming
your MS and kicking it back to the sky.
As we all know, 2020 has been an extraordinary year with COVID-19 playing a major role in our day to day lives. Many states are still feeling the effects of lockdowns and restrictions which has affected many people financially with the loss of employment and caused other economic hardships. The MSEO has not been immune to the challenges of this pandemic.
Therefore, on January 1, 2021 we are sad to say the MSEO will no longer be able to continue to offer the MS ID Card at no cost. This was a very difficult decision to make as we have been offering the MS ID Cards since 2016 at no cost to our members. While we hoped to have this program be fee free indefinitely, current times prevent us from doing so. A recent review of the MS ID Card program shows that we spend $22.46 for every card that we issue. While we have been able to absorb this cost due to our incredible all volunteer staff and other resources, given the current times we are unable to continue to do so.
FlywheelMS is a community of 5000 MS patients with free PicnicHealth accounts contributing their de-identified medical records to research. PicnicHealth specializes in collecting and structuring patientâ€™s medical records and creating real world datasets for researchers. With your consent, PicnicHealth anonymizes your medical records and combines them with the real world stories of fellow MS patients. Scientific discovery in MS only happens when patients like you share your medical experience. Just like every drug you use to treat your MS required a clinical trial, understanding MS in the real-world takes your unique medical journey.
If you are interested in participating or want to learn more about this research program, visit http://flywheel.ms/mseo to get your records and join the real-world evidence movement in MS.