MISSION STATEMENT

Providing education, encouragement and self-empowerment to those affected with MS, their families and caregivers.

ABOUT OUR LOGO

Our logo was designed by our members who have Multiple Sclerosis. The downward lightning bolt represents the day you were diagnosed with MS and all the confusion you felt and how it would impact your life. The upward lightning bolt represents you taking charge of your MS and not becoming your MS and kicking it back to the sky.

The Multiple Sclerosis Encouragement Organization (MSEO) is pleased to let you know about Apps that were developed by Dr. Darin Okuda, MD from the University of Texas Southwestern in Dallas, which you can purchase or download for free (if stated). You can put these Apps on your phone to help you manage your MS. All Phone Apps are available from the Apple App Store and the Google Play Store.

Latest Wayne's Corner

Important MS ID Card Change Effective January 1, 2021

As we all know, 2020 has been an extraordinary year with COVID-19 playing a major role in our day to day lives. Many states are still feeling the effects of lockdowns and restrictions which has affected many people financially with the loss of employment and caused other economic hardships. The MSEO has not been immune to the challenges of this pandemic.

Therefore, on January 1, 2021 we are sad to say the MSEO will no longer be able to continue to offer the MS ID Card at no cost. This was a very difficult decision to make as we have been offering the MS ID Cards since 2016 at no cost to our members.  While we hoped to have this program be fee free indefinitely, current times prevent us from doing so. A recent review of the MS ID Card program shows that we spend $22.46 for every card that we issue.  While we have been able to absorb this cost due to our incredible all volunteer staff and other resources, given the current times we are unable to continue to do so.

Your story matters. We get your records, you give them to science.

FlywheelMS is a community of 5000 MS patients with free PicnicHealth accounts contributing their de-identified medical records to research. PicnicHealth specializes in collecting and structuring patient’s medical records and creating real world datasets for researchers. With your consent, PicnicHealth anonymizes your medical records and combines them with the real world stories of fellow MS patients. Scientific discovery in MS only happens when patients like you share your medical experience. Just like every drug you use to treat your MS required a clinical trial, understanding MS in the real-world takes your unique medical journey.

If you are interested in participating or want to learn more about this research program, visit http://flywheel.ms/mseo to get your records and join the real-world evidence movement in MS.


Latest Care Partner's Connection

The Caregiver: An Essential Member of the Healthcare Team

 

 

As the primary caregiver for my spouse, I notice subtle changes that no one else detects. My husband usually has a core body temperature of 97.6°F. If his oral temperature registers 99.5°F, he has a fever that may require treatment. I am so in tune to his body temperature. I can often detect even a low-grade fever by touch alone. I also know that if he becomes septic, he often drops his body temperature rather than elevating it.

When I accompany my spouse to the doctor, I can tell his healthcare provider which organ(s) of his body function correctly and which may be malfunctioning based on changes I’ve detected in color, odor, volume, patterns, frequency, trauma, change to routine, or other difficulty being encountered with an organ, limb, or area of the body. Having access to this vital information provides the healthcare team with direct insight into a host of details that they otherwise would not know. When the physician can collaborate on concerns, together we identify the best possible solution and his medical team does not waste time trying tactics that would not be effective.

 

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